Wednesday, February 6, 2008

Kimmie Update

I am doing my updates all in one day! I haven't updated in a few weeks so sorry. Life has been totally wrapped up in CBYC that it has been a little crazy at home. With that being said I still have good news from the home front. We met with a new doctor at PCMC yesterday. He has informed us that with all of the seizures that Kimmie has had the gland that controls her eating was damaged probably in her first one hour seizure. Which is why she is so skinny and why she hates to eat. She isn't eating to eat, she is eating out of habit or because we are making her. She never really is hungry. So they can put her on meds but due to the meds she is on we hate to add one more medication. They also informed me that this wasn't caused by her meds but may have been brought on earlier due to one of the meds we had her on when she was little. That gland is controlled by hormones and now that she is getting older hormones are starting to come into play it kicked in the major problems. Her body isn't retaining any of her food. It just passes right through her. So we can artifically make the desire to eat (hopefully). We are adding CornStarch to her diet, just as we would a new medication. Although it is cheaper with no co-pay issues. Corn starch apparently makes you feel more hungry and stays into your system longer than anything else. It also makes other foods stick to it. The doctor warned me that she will put on weight with this! I am really overly excited. Finally an answer to all of this!

2 comments:

Brandi said...

That is so great about Kimmie. I hope that the corn starch does the trick. I'm glad there is another option for you, instead of putting her on another medication.

How did everything go with CBYC? I hope it went well! You sure have a lot on your plate right now. Call me when you need a break and we'll have the boys play.

Unknown said...

I'm so glad they figured that out, I really hope it works for you guys.