Kimmie's Broken Arm

For the very first time in her life Kimmie had an injury that didn't have to do with a seizure. She fell on the playground. She broken her growth plate. The doctors told us that her bruise rivaled some hockey players. It healed nicely without any major things. But it sure caused drama in our home.

Help Mom it is an Emergency

This has been a really crazy week. My kids are off track this week, so that should say it all. I really would like to start it all over but I really don't want to go through this week again. Monday Johnny got sick. So I stayed home with him. He still wasn't feeling too great on Tuesday but he was really fine just a little clingy and not eating a lot yet. I have been feeling really extra tired lately and keep falling asleep at a drop of a hat. I didn't know what was wrong with me so I went to the doctor Tuesday after and got a work up done. I happened to have had to take both kids and they climbed all over me during the visit. The doctor said that she would be tired dealing with those two. She ran everything imagionable and ordered a sleep test for me. A funny side note is they went to take my blood and Kimmie says I want to help so the guy givers her my other arm and hands her the elastic band thing and gloves and said go ahead. Not realizing Kimmie really knows what she is doing. He took my blood right as he finished she asked for the butterfly (a type of needle) to do her side. He told her next time. Believe me next time I will make sure not to take my daughter. Anyway, yesterday I got up to go to work and Erik said he didn't feel good. He was a little pale so I told him to call into work (he was suppose to close) and I went to work. One hour later I got a call from Kimmie,

"Mom it is an emergency help."

Me, "Kimmie what is wrong?"

Kimmie, "Daddy it throwing up bad. He really needs your help."

I grabbed my stuff and out the door I went. When I arrived home Kimmie had everything under control. She had taken her little play laptop and wrote Daddy Hansen on the top. She put an X for every time he had throw up. She put on the rubber gloves from the whole taking mommies blood the day before thing and was taking his temperature (with her doctor kit therometer). Erik looked like please help me. She was so cute. I wish I would have gotten a photo of her all cute.

My doctor called back checking on me from the day before's experiences. I said I am fine but here is my problem and I told her all about Erik. So she said bring him in. His blood sugar was sky high and he was starting to go in and out of small seizures. They would start at his fingers and move up his arm and go away. But he had a lot of them. The doctor gave him shots and kept him for a while to monitor him. They told me if he still didn't keep anything down to go to the emergency room. Thank heavens we didn't have to go there last night. He is finally doing a little better. Also thank heavens for the new neighbors I have that dropped everything to help me yesterday.

Oh, BTW the test results came back and I am fine I have a very big vitamin B12 deficiency and so I had a shot yesterday I am scheduled for another in three weeks I have new vitamins and if it doesn't come up in six weeks we will start a more rigerous shot schedule.

I can't wait for school to start again.

This weeks hospital trip

Not that moving isn't enough stress in a families life. But Kimmie had another hospital trip this week. I have to tell you that no this isn't what you are thinking. Tuesday after a very long hard morning I finally made it to work. Although the moment I put my purse away, hung up my coat and turned on my computer the phone rang. It was Kimmie's school teacher. She said, "Kris I didn't want to call and tell you this." I don't think that is a good way to start a phone call so I asked, "What has happened?" Kimmie had crashed heads with another student and fallen to the ground. The teacher exclaimed that she was bleeding really bad and was fine but she would probably need stitches. I turned myself right back around and put my coat on and left. I picked her up, by that point the bleeding had pretty much stopped. I called her doctor and he couldn't see her for another two hours. So I took her to the nearst instacare. Bad mistake. Don't take a child with seizure and a head injury to someone who doesn't know her. They were too scared to see her. So therefore we ended up at the emergency room. As we walked in the door. The nurse at the front desk says, "Kimmie it is nice to see you standing up and walking, and not in an ambulance." I think it is pretty bad when the ER nurses know you by name and what your condition is. Finally two hours and some glue later we finally headed home to put her in bed and go on seizure watch. Notice I could have saved myself some money waiting for her doctor. She had a few small seizures as a result although nothing horrible. Her cuts weren't very long but deep. So if she will leave the glue alone we can avoid stitches. Tuesday we head to the doctor to have her head injury checked out by her pediatrician. So this is a photo of her with the cuts by her nose and on her forehead before Laura does her little touch up with them and makes them disappear.

Yard Sale

Kimmie has officially been diagnosed with Dravet Syndrome. I don't know if this is a good or bad thing. I can only tell you that it is nice for the fact that finally her unusual seizure behavior finally fits into a syndrome box with other kids. Well with that being said, the International Dravet group that I am a member in is having a conference in August. They will be holding it in Chicago. The really neat thing about this is that Dr. Dravet will be attending. The most world renowned doctors in this area will be seeing patients for consultations. A friend of mine e-mailed Dr. Dravet and she said that she would be interested in seeing Kimmie. I don't know if we will get a consultation with her or one of the other doctors but Kimmie and I need to head to Chicago. If there is any more ideas on what we could be doing different to help her I would like to find them. We officially with her new medication, can't afford the trip. I have received a grant to pay for our conference registration and the doctor consultations. I have also applied for other grants although nothing at this point has come through. So my dear friend Bethany suggested the other day that I hold a yard sale for Kimmie. So if you are interested in donating items or coming and helping or purchasing anything I will be holding a...

Fundraising Yard Sale to raise money for Kimmie's Chicago Trip
It will be held at my home (I don't want to post my address on the web)
June 7th
from 8am - noon